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Rare Diseases > Hemophilia

Please note that some measures are designed to be used for clinical research for outcome
assessment and some measures are designed to be used as a screening tool.


Description and Context of Use
The HAEMOPREF measures the ease of use and patients’ preference for hemophilia treatment.
Population age range
Adults (18-65)
Number of items
Recall Period
Right now
Response Scales
11-point Likert scale 
Administration Mode
Self-administered; Paper and pen; E-version
Administration Time
5 minutes
Teal S, Brohan E, Hettema Y, et al. Development and psychometric evaluation of a novel tool for assessing patient perception and preference for haemophilia treatment (HaemoPREF). Haemophilia. 2014 Sep;20(5):666-7.
Original Language
English (US)
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